We are a part of the Ectodermal Dysplasias International Network with the following ectodermal dysplasias groups around the world. We work with their leaders to collaborate and share information. The group also works to provide information about the ectodermal dysplasias community for health care providers.




We are grateful to these corporations, organizations and individuals for their sponsorship in 2016.

StraumannHubbard Broadcasting

Louis J. and June E. Kay Foundation


The Louis and Gladyce Foster Family Foundation