Our Staff

Mary Fete

Mary Fete, M.S.N., R.N., C.C.M.

Executive Director
2002 – present
mary@nfed.org
618-566-6872

Mary is our fearless leader who brings two decades of nursing and case management experience and her passion to make a difference. She oversees everything we do.  She leads our Research Program and finds investigators willing to study the conditions. She also searches for new ways to make dental care affordable and accessible for families. She’s the energetic force who charts the NFED’s future and leads with her heart in all that she does.

 

Kelley Atchison

Kelley Atchison

Director, Family and Community Programs
2001 – present
Kelley@nfed.org
618-566-6873

Kelley spends her time talking to people affected by ectodermal dysplasias and their families. She welcomes new families, lends a listening ear, celebrates their accomplishments and shares in their frustrations. Kelley provides support to families for what they need. She connects them to other families, doctors, dentists and resources. She also plans our largest event that brings families, doctors and researchers together every year, the Family Conference. If you need help in advocating in schools or working through the insurance appeals process, Kelley is your gal.

 

Brittany Campbell

Brittany Campbell, M.P.A., CFRE

Director, Development
2015 – present
Brittany@nfed.org
618-566-6871

Brittany finds ways to fund all of our programs and activities. She searches for new funding opportunities, asks people for money, writes grants, organizes events and solicits sponsors. She is busy building relationships with people, organizations and corporations who care about ectodermal dysplasias. Brittany is that person who actually loves raising money! She’s passionate about finding revenue sources to grow our mission. Since 2005, she has worked in development for nonprofits in legal assistance, the arts and a membership-based organization.

 

Jodi Edgar Reinhardt

Jodi Edgar Reinhardt

Director, Marketing and Communications
1994 – present
Jodi@nfed.org
618-566-6875

Jodi is our communication guru. She spends her time talking, writing, posting, creating, and photographing to tell amazing stories about our ectodermal dysplasias community. She looks for new ways to raise awareness and educate others. Jodi keeps NFED.org fresh and manages our community on social media. She’s also the resident historian since she’s been here so long! Her NFED career started as a college intern and she’s been here ever since.

 

Kayla Hollenkamp

Kayla Hollenkamp

Administrative Assistant
2015 – present
Kayla@nfed.org
618-566-2020

Kayla is our staffer who helps in lots of areas. She is our executive director’s right hand, tending to the details of the research and treatment programs. She plans logistics for meetings of the staff, Board and Councils and makes sure the office has supplies and working computers and copiers.  Kayla spends a lot of time in our database, keeping our records up-to-date and providing staff with queries and reports. She selects and orders our inventory of cool NFED gear and items.

 

Lea Richardson

Lea Richardson

Manager, Community Engagement
2011 – present
Lea@nfed.org
618-566-6874

Lea manages and recruits volunteers to help our staff in all areas of operations. She promotes opportunities, trains them on their tasks, and connects and supports them. Lea finds creative ways to recognize them for their time and efforts. She works with families to plan and execute their fundraisers. She also processes donations and assists with bookkeeping.  Lea is from The Netherlands and enjoys building relationships with families. She can speak several languages, which is helpful when translating communications for us.


A loving and caring group of awesome people. Thank you for everything that you all do everyday. – Anthony


Board of Directors

George Barbar
Co-President

Ruth Geismar
Co-President

Karl Nelsen, PA-C, M.S.
Secretary

Anil Vora
Treasurer

Mary Kaye Richter
Honorary Member

Krista C. Basile

Roy Moffitt

Richard Stratz

Keith Throm

Marianne Vermeer

J. Timothy Wright, D.D.S., M.S.

Patient Care Council

Julie Claeys

Sameh El-Ebrashi, B.D.S., M.S., F.A.C.P.
Clear Choice, Portland

Frank H. Farrington, D.D.S., M.S.
Retired from Virginia Commonwealth University School of Dentistry

Timothy J. Fete, Sr., M.D., M.P.H.
University of Missouri-Columbia School of Medicine

Albert D. Guckes, D.D.S., M.S.D.
University of North Carolina Chapel Hill

Jonathan Korostoff, D.M.D., Ph.D.
University of Pennsylvania School of Dental Medicine

John Stith, M.D.
Saint Louis University School of Medicine

Sarah Tevis-Poteet, D.D.S., P.A.
Private Practice, Dallas

Thomas Vergo, Jr., D.D.S.
Tufts University School of Dental Medicine


Scientific Advisory Council

Chairman

Clark Stanford, D.D.S., Ph.D.
University of Illinois – Chicago School of Dentistry

Vice-Chair

Timothy J. Fete, Sr., M.D., M.P.H.
University of Missouri-Columbia School of Medicine

Secretary

Alanna F. Bree, M.D., F.A.A.D.
A Children’s House for Pediatric Dermatology

Liaison from the Board of Directors

Frank H. Farrington, D.D.S., M.S.
Retired from Virginia Commonwealth University School of Dentistry

Members

Lauren Blieden, M.D.
Cullen Eye Institute

Clayton Butcher, M.D.
University of Missouri Internal Medicine and Pediatrics – Woodrail

Cynthia Marie Carver DeKlotz, M.D.
MedStar Washington Hospital Center/Georgetown University Hospital

Dorothy Katherine Grange, M.D.
Saint Louis Children’s Hospital

Brody J. Hildebrand, D.D.S.
Baylor University

Brandon Hopkins, M.D.
Cleveland Clinic Head and Neck Institute

Maranke I. Koster, Ph.D.
University of Colorado Denver

Richard A. Lewis, M.D., M.S.
Baylor College of Medicine

Pilar L. Magoulas, M.S., C.G.C.
Baylor College of Medicine

Anubhav Mathur, M.D., Ph.D.
University of California – San Francisco

Beau Meyer, D.D.S., M.P.H.
University of North Carolina Chapel Hill

Kathleen Motil, M.D., Ph.D.
Baylor College of Medicine

Jill Powell, M.D.
St. Mary’s Health Center

Elaine C. Siegfried, M.D.
Saint Louis University School of Medicine

Raj Sindwani, M.D., F.A.C.S., F.R.C.S.
Cleveland Clinic, Head and Neck Institute

J. Timothy Wright, D.D.S., M.S.
University of North Carolina Chapel Hill