Our Staff

Mary Fete

Mary Fete, M.S.N., R.N., C.C.M.

Executive Director
2002 – present

Mary is our fearless leader who brings two decades of nursing and case management experience and her passion to make a difference. She oversees everything we do.  She leads our Research Program and finds investigators willing to study the conditions. She also searches for new ways to make dental care affordable and accessible for families. She’s the energetic force who charts the NFED’s future and leads with her heart in all that she does.


Becky Abbott, MPH

Manager, Treatment and Research
2019 – present

Becky helps families affected by ectodermal dysplasias access the dental treatment they need.  She can talk you through the process of finding a care provider and how to fund that care. She can also help you understand the insurance process and how to apply for financial assistance from the NFED and for free dental implants. Becky will be managing the Dental  Treatment Centers. Becky strives to expand our research program and coordinates logistics for research projects.


Kelley Atchison

Kelley Atchison

Director, Family and Community Programs
2001 – present

Kelley spends her time talking to people affected by ectodermal dysplasias and their families. She welcomes new families, lends a listening ear, celebrates their accomplishments and shares in their frustrations. Kelley provides support to families for what they need. She connects them to other families, doctors, dentists and resources. She also plans our largest event that brings families, doctors and researchers together every year, the Family Conference. If you need help in advocating in schools or working through the insurance appeals process, Kelley is your gal.


Brittany Campbell

Brittany Campbell, M.P.A., CFRE

Director, Development
2015 – present

Brittany finds ways to fund all of our programs and activities. She searches for new funding opportunities, asks people for money, writes grants, organizes events and solicits sponsors. She is busy building relationships with people, organizations and corporations who care about ectodermal dysplasias. Brittany is that person who actually loves raising money! She’s passionate about finding revenue sources to grow our mission. Since 2005, she has worked in development for nonprofits in legal assistance, the arts and a membership-based organization.


Jodi Edgar Reinhardt

Jodi Edgar Reinhardt

Director, Marketing and Communications
1994 – present

Jodi is our communication guru. She spends her time talking, writing, posting, creating, and photographing to tell amazing stories about our ectodermal dysplasias community. She looks for new ways to raise awareness and educate others. Jodi keeps NFED.org fresh and manages our community on social media. She’s also the resident historian since she’s been here so long! Her NFED career started as a college intern and she’s been here ever since.


Kayla Hollenkamp

Kayla Hollenkamp

Administrative Assistant
2015 – present

Kayla is our staffer who helps in lots of areas. She is our executive director’s right hand, tending to the details of the research and treatment programs. She plans logistics for meetings of the staff, Board and Councils and makes sure the office has supplies and working computers and copiers.  Kayla spends a lot of time in our database, keeping our records up-to-date and providing staff with queries and reports. She selects and orders our inventory of cool NFED gear and items.


Lea Richardson

Lea Richardson

Manager, Community Engagement
2011 – present

Lea manages and recruits volunteers to help our staff in all areas of operations. She promotes opportunities, trains them on their tasks, and connects and supports them. Lea finds creative ways to recognize them for their time and efforts. She works with families to plan and execute their fundraisers. She also processes donations and assists with bookkeeping.  Lea is from The Netherlands and enjoys building relationships with families. She can speak several languages, which is helpful when translating communications for us.

A loving and caring group of awesome people. Thank you for everything that you all do everyday. – Anthony

Board of Directors

Ruth Geismar

Karl Nelsen, PA-C, M.S.
Vice President

George Barbar

Keith Throm

Mary Kaye Richter
Honorary Member

Krista C. Basile

Roy Moffitt

Richard Stratz

Marianne Vermeer

J. Timothy Wright, D.D.S., M.S.

Patient Care Council

Julie Claeys

Sameh El-Ebrashi, B.D.S., M.S., F.A.C.P.
Clear Choice, Portland

Frank H. Farrington, D.D.S., M.S.
Retired from Virginia Commonwealth University School of Dentistry

Timothy J. Fete, Sr., M.D., M.P.H.
University of Missouri-Columbia School of Medicine

Albert D. Guckes, D.D.S., M.S.D.
University of North Carolina Chapel Hill

Jonathan Korostoff, D.M.D., Ph.D.
University of Pennsylvania School of Dental Medicine

John Stith, M.D.
Saint Louis University School of Medicine

Sarah Tevis-Poteet, D.D.S., P.A.
Private Practice, Dallas

Thomas Vergo, Jr., D.D.S.
Tufts University School of Dental Medicine

Scientific Advisory Council


Clark Stanford, D.D.S., Ph.D.
University of Illinois – Chicago School of Dentistry


Timothy J. Fete, Sr., M.D., M.P.H.
University of Missouri-Columbia School of Medicine


Alanna F. Bree, M.D., F.A.A.D.
A Children’s House for Pediatric Dermatology

Liaison from the Board of Directors

J. Timothy Wright, D.D.S., M.S.
University of North Carolina Chapel Hill


Lauren Blieden, M.D.
Cullen Eye Institute

Clayton Butcher, M.D.
University of Missouri Internal Medicine and Pediatrics – Woodrail

Cynthia Marie Carver DeKlotz, M.D.
MedStar Washington Hospital Center/Georgetown University Hospital

Frank H. Farrington, D.D.S., M.S.
Retired from Virginia Commonwealth University School of Dentistry

Dorothy Katherine Grange, M.D.
Saint Louis Children’s Hospital

Brody J. Hildebrand, D.D.S.
Baylor University

Brandon Hopkins, M.D.
Cleveland Clinic Head and Neck Institute

Maranke I. Koster, Ph.D.
University of Colorado Denver

Richard A. Lewis, M.D., M.S.
Baylor College of Medicine

Pilar L. Magoulas, M.S., C.G.C.
Baylor College of Medicine

Anubhav Mathur, M.D., Ph.D.
University of California – San Francisco

Beau Meyer, D.D.S., M.P.H.
University of North Carolina Chapel Hill

Kathleen Motil, M.D., Ph.D.
Baylor College of Medicine

Jill Powell, M.D.
St. Mary’s Health Center

Elaine C. Siegfried, M.D.
Saint Louis University School of Medicine

Raj Sindwani, M.D., F.A.C.S., F.R.C.S.
Cleveland Clinic, Head and Neck Institute