children-with-ectodermal-dysplasias

We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
Come take a look!

What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

Learn More

Stories of Hope

How This Teen Takes On Life With Ectodermal Dysplasia
A Leap of Faith to Open Ourselves
A Friend Diagnosed My Grandson
A Shot of Courage and Lavender Cooling Mist
Ryan Geismar

Halloween Bash

We are close to reaching our $100,000 goal! There’s still time to donate. Also, check out our Halloween Bash journal.

Learn More