We empower and connect those touched by ectodermal dysplasias through education, support and research.
Families affected by ectodermal dysplasias often have trouble paying for necessary dental work that's not covered by insurance companies. Teeth are not cosmetic! We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change. Because of our passionate advocates, we now have more than 290 co-sponsors in the House of Representatives!
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What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
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Announcing the 20th Anniversary of Our Halloween Bash
We invite you to join us – virtually – for our largest event of the year, the Halloween Bash. The Geismar family proudly hosts this fundraising event in October. You can make a gift, purchase an ad in the Journal or bid on unique and fun auction items. Help us reach our goal to raise $100,000 for our mission to help families and advance research, treatment and cures.
Upcoming Events
- Sep 26, 2020 Virtual Minnetonka 5K 2020
- Oct 14, 2020 Learn How New XLHED Clinical Trial Could Affect Future Generations of Your Family
- Oct 16, 2020 Halloween Bash 2020