
We empower and connect those touched by ectodermal dysplasias through education, support and research.

What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
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The Impact of Research
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118
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1,000+
Participants from NFED Families

Will You Support Our 40th Anniversary?
Just 40 years ago, individuals and families affected by ectodermal dysplasias didn’t have a trusted place to turn when they received this rare diagnosis. Today, the NFED is the global expert and provider of research, education, advocacy and support for ALL affected by ectodermal dysplasias. Will you help us increase our impact in the next 40 years and beyond?
Upcoming Events
- Jul 14, 2022 2022 Family Conference
- Oct 18, 2022 Night for Extraordinary Dreams