We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
Come take a look!

What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Stories of Hope

A Grandmother’s Take on Ectodermal Dysplasia
In Remembrance of Joseph J. Barone
The Tear Is A Permanent Friend
Diagnosed Over the Phone With Ectodermal Dysplasia

JOIN US ON CAPITOL HILL TO ADVOCATE FOR INSURANCE BENEFITS FOR TEETH

We invite you to our 2nd Ectodermal Dysplasias Advocacy Day on Capitol Hill on Wednesday, July 18. Help us advocate for a federal law that will mandate insurance benefits to help you get your dental care.

Learn More and Register