We empower and connect those touched by ectodermal dysplasias through education, support and research.
Families affected by ectodermal dysplasias often have trouble paying for necessary dental work that's not covered by insurance companies. Teeth are not cosmetic! We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change.
Take Action
What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
Learn MoreWe're Here to Listen and Provide Support
Browse Our Resource Library
Find a Supportive Community
Get Help From NFED Staff
The Impact of Research
$3.6M
Invested in Research
118
Research Studies and Trials
1,000+
Participants from NFED Families
International Ectodermal Dysplasias Research Conference
The NFED has invited cutting-edge researchers and scientists from around the world to collaborate and identify ways to more effectively diagnose and treat ectodermal dysplasias and related diseases. This event, Translating Discovery to Therapy, will be held October 21-24 in Charlotte, North Carolina.
