Ask your legislators to be an Original Co-Sponsor of ELSA before the March 12th deadline! Advocate for Smiles

We empower and connect those touched by ectodermal dysplasias through education, support and research.

Father and child supporting ELSA together Families affected by ectodermal dysplasias often have trouble paying for necessary dental work that's not covered by insurance companies. Teeth are not cosmetic! We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change. Because of our passionate advocates, we now have more than 290 co-sponsors in the House of Representatives!
Take Action

What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

Learn More

The Impact of Research


Invested in Research


Research Studies and Trials


Participants from NFED Families

Get Involved in Research

2021 Conference From Your Couch

Join us from the comfort of your couch! You don’t want to miss the stellar line-up of speakers this year. The second webinar is How to Treat Eye Concerns on March 9, 2021.

Learn More & Register