Four females affected by EEC syndrome

We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
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What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Stories of Hope

My Life as Nurse, Mom and Advocate
This Is Not Some Hollywood Smile Issue
Mr. and Mrs. Weirdo and Goofball
Adopting My Daughter With Goltz Syndrome

WATCH THESE FREE EDUCATIONAL VIDEOS TO LEARN MORE ABOUT ECTODERMAL DYSPLASIAS

If you haven’t been able to attend a Family Conference, we have a gift for you. Watch these videos that address dental treatment options for children, dermatology, insurance and more.

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