We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
Come take a look!

What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Stories of Hope

Babies With XLHED Treated In Utero
Evan’s Story – Part II
Life with Ectodermal Dysplasia
Keep on Smiling: The Story of Lucy’s First Surgery

February is Ectodermal Dysplasias Awareness Month

Join us in our worldwide effort throughout February to raise awareness and funds for ectodermal dysplasias. Our theme is “Power to Smile: Teeth Are Not Just Cosmetic.”  We are highlighting the impact that missing teeth from ectodermal dysplasias have on our families’ smiles, health and lives. Our vision is that every person affected by ectodermal dysplasia will have the Power to Smile, talk and eat with confidence! We have all the tools you need to celebrate.

Learn How You Can Get Involved