We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
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What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Stories of Hope

Miss Wiggy
How I Replaced the Lonely Feeling With Hope
PROSE Lenses Give Super E the Ability to See
What better time to raise money for the NFED?

Impact Cures, Now!

We are at a pivotal moment in time where significant progress and breakthroughs are being made that can change the lives of people affected by ectodermal dysplasias for generations to come. Find out how you can get involved in our “Impact Cures, Now!” research campaign.

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