We empower and connect those touched by ectodermal dysplasias through education, support and research.

Our library has all sorts of information on treating and living with ectodermal dysplasias, from cosmetics and keeping cool to the search for a cure.
Come take a look!

What are ectodermal dysplasias?

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.  When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Stories of Hope

Diagnosed Over the Phone With Ectodermal Dysplasia
Remembering Lee: A Man Among Men
My Life as Nurse, Mom and Advocate
This Is Not Some Hollywood Smile Issue


Advocate for Super Smiles! We invite you to take action in February to raise awareness about ectodermal dysplasias, the extraordinary dental care costs our families face and our fight for a law to get insurance to provide benefits.

Learn What You Can Do to Raise Awareness