
We empower and connect those touched by ectodermal dysplasias through education, support and research.

What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
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The Impact of Research
$3.6M
Invested in Research
118
Research Studies and Trials
1,000+
Participants from NFED Families

EDELIFE CLINICAL TRIAL:
Developing The First Potential Treatment for XLHED
Can you imagine if your son born affected by x-linked hypohidrotic ectodermal dysplasia (XLHED) had working sweat glands? Early results from six XLHED-affected boys who received an investigational medicine show they are indeed sweating and have other improved symptoms. Researchers are now studying that first potential treatment for XLHED in a human clinical trial.
Women, we invite you to learn if you are eligible to participate in for the study. Men, help us share information about the trial with women in your family who may be carriers of the gene for XLHED.