We empower and connect those touched by ectodermal dysplasias through education, support and research.
Families affected by ectodermal dysplasias often have trouble paying for necessary dental work that's not covered by insurance companies. Teeth are not cosmetic! We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change.
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What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
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Participants from NFED Families
Announcing the 2021 Annual HALLOWEEN BASH!
We invite you to join us – virtually – for our most exciting and important event of the year, the Annual Halloween Bash. Each October, the Geismar family proudly hosts this FUN fundraising event in.
There are many ways to help us reach our goal to raise $100,000 for our mission to help families and advance research, treatment and cures. You can make a gift, purchase an ad in the Journal or bid on unique and fun auction items.
Upcoming Events
- Oct 10, 2021 Halloween Bash 2021
- Oct 21, 2021 2021 International Ectodermal Dysplasias Research Conference
- Nov 9, 2021 Webinar: All There is To Know About Genetics