We empower and connect those touched by ectodermal dysplasias through education, support and research.
Families affected by ectodermal dysplasias often have trouble paying for necessary dental work that's not covered by insurance companies. Teeth are not cosmetic! We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change.
Take Action
What are ectodermal dysplasias?
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.
Learn MoreWe're Here to Listen and Provide Support
Browse Our Resource Library
Find a Supportive Community
Get Help From NFED Staff
The Impact of Research
$3.6M
Invested in Research
118
Research Studies and Trials
1,000+
Participants from NFED Families
Announcing the 2021 Annual HALLOWEEN BASH!
We invite you to join us – virtually – for our most exciting and important event of the year, the Annual Halloween Bash. Each October, the Geismar family proudly hosts this FUN fundraising event.
There are many ways to help us reach our goal to raise $100,000 for our mission to help families and advance research, treatment and cures. You can make a gift, purchase an ad in the Journal or bid on unique and fun auction items.
Upcoming Events
- Nov 30, 2021 Double Your Impact on Giving Tuesday!
- Apr 7, 2022 NIGHT FOR EXTRAORDINARY DREAMS POSTPONED TO 2022
- Jul 14, 2022 2022 Family Conference