Dental Treatment Centers Program

If you or your child affected by ectodermal dysplasia needs dental care, whether it is dentures or dental implants, you may want to consider one of the universities in the NFED's Dental Treatment Center Program. The Foundation has partnered with universities across the United States to provide dental care for individuals affected by ectodermal dysplasias. Our goal is to increase their access to quality and affordable oral health care. Each center’s team of providers has experience in treating the ectodermal dysplasias.

It is the patient's responsibility to make an informed decision as to the appropriateness of care and to make suitable arrangements for payment of associated fees.

Participating Dental Treatment Centers

• Dental Specialists of Virginia
• Saint Louis University Center for Advanced Dental Education
• Southern Illinois University School of Dental Medicine
• The Ohio State University College of Dentistry
• The University of North Carolina at Chapel Hill
• University of Alabama at Birmingham
• University of Connecticut
• University of Iowa
• University of Missouri Kansas City
• University of Pennsylvania

Fees

Fees vary according to the location. All travel, lodging and meal expenses associated with treatment are the patient's responsibility.

Application Process

Contact the NFED first. Do NOT contact the center directly as you will not receive the benefits of our program if you do so. Individuals who want to participate in the Dental Treatment Center Program must do the following:

• Complete a Patient Profile
• Complete profile in the Ectodermal Dysplasias International Registry
• Submit a current photograph at least 2” x 3” in size
• Submit a letter from a physician confirming the diagnosis

Download Patient Profile

The NFED contacts all applicants upon receipt and review of their application. Approved applicants will be referred to a contact person at the appropriate center. Once approved by the NFED, applicants will be responsible for contacting the university to arrange an appointment for an intra-oral evaluation. The NFED will share the name of the approved applicants with the university staff.

Questions? Email Mary Fete, Director of Research and Treatment.