Registration Form

Welcome to the NFED! Registration is free and entitles you to receive our newsletter, e-mail announcements, and doctor referrals, and to network with other individuals in the NFED family. Please complete all areas of the form below. The NFED will contact you with helpful information and answer any questions you may have.

If you are interested in the ectodermal dysplasia syndromes and would like to receive a basic information packet, please fill out this form (note, required fields in red):

This form is secured by VeriSign	Registration Form Welcome to the NFED! Registration is free and entitles you to receive our newsletter, e-mail announcements, and doctor referrals, and to network with other individuals in the NFED family. Please complete all areas of the form below. The NFED will contact you with helpful information and answer any questions you may have. If you are interested in the ectodermal dysplasia syndromes and would like to receive a basic information packet, please fill out this form (note, required fields in red):

First Name
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NFED Information
I’d like to receive E-news alerts via email.	Yes No
I am: (Check all that apply)	an individual affected by ED the parent of an individual affected by ED sibling of an individual affected by ED other

Individual Affected By ED
First Name
Last Name
	Male Female
Birthdate
ED Syndrome	Ankyloblepharon-ED-Clefting AEC (Hay-Wells Syndrome) Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC Syndrome) Focal Dermal Hypoplasia (Goltz Syndrome) Hidrotic Ectodermal Dysplasia (Clouston Syndrome) Hypohidrotic Ectodermal Dysplasias (HED) Incontinentia Pigmenti (IP) Rapp-Hodgkin’s Syndrome (RHS) Trichorhinophalangael (TRP Syndrome I) Witkop’s Tooth Nail Syndrome Other Unknown
I have a question about:
You may share my name with other people who are affected by ED and are looking for someone in my area:	Yes No