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A Dental Guide to the Ectodermal Dysplasias
– Booklet discussing the dental manifestations and treatment possibilities for ectodermal dysplasia. |
$2.00 |
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A Family Guide to the Ectodermal Dysplasias
– Booklet discussing the ectodermal dysplasia syndromes from symptoms to possible treatments. The genetics of the disorder and emotional health of the patient are also discussed |
$2.00 |
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A Guide to the Eyes, Ears, Nose, and Throat in the Ectodermal Dysplasias
– Booklet describing the various eye, ear, nose & throat problems associated with ectodermal dysplasia. |
$2.00 |
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A Guide to the Skin, Hair and Nails in the Ectodermal Dysplasias
– Booklet describing appropriate affected ectodermal derivatives. |
$2.00 |
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The Multi-Syndrome Guide to the Ectodermal Dysplasias
– Booklet describing common and rare ED syndromes. It also provides a classification system for understanding these complex syndromes |
$2.00 |
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Parameters of Oral Health Care for Individuals Affected by Ectodermal Dysplasias
– Guidelines for health care professionals to manage the oral health problems of individuals affected by ED. |
$2.00 |
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Carver’s New Smile
– Four color book especially for children. It tells the story of a young boy and his dental journey. The photo book was designed to help children understand what to expect in the denture process. |
$5.00 |
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Charley's Story
– One family’s diary of their experiences with a son affected by hypohidrotic ectodermal dysplasia. |
$2.00 |
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Bibliography
– A 62-page listing of citations of ED articles in medical and dental journals. |
$15.00 |
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NFED / ED Pamphlet
– Describes the services provided by and the activities of the NFED and gives a brief description of the ED syndromes. |
FREE |
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Insurance Packet
– Includes tips on helping you get the bental benefits you deserve, a listing of medical insuarnce companies that have paid ED related dental claims and letters of support prepared by the NFED Scientific Advisory Board relating to insurance coverage of dental implants and other dental treatments. |
$2.00 |
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ED Information cards
– A business size card with the name and address of the NFED and a brief explanation of the need for a cool environment. |
5 for $1.00 |
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School Advocacy Information
– Includes statements prepared by our Scientific Advisory Board relating to temperature control in schools, legal and medical points to use when making a case for classroom air conditioning, and a sample letter explaining what ED is to give to school personnel. |
$2.00 |
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Information on Wig Companies
– A name & address listing. |
FREE |
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Treatment Fund Application
– Form to be completed for funding for medical/dental care. |
FREE |
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Donation Envelopes
– Preprinted envelopes for honorariums, memorials & general donations. |
FREE |
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Annual Report
– Report detailing NFED activities and NFED year end financial report. |
FREE |
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Tooth Party Kit
– Includes everything you needs to have a celebration for your child’s new dentures or dental work |
$2.00 |
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