National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Geismar Family

Halloween Bash

Join the Geismar family in raising awareness and funds for ectodermal dysplasias.There's an online auction and journal.

Learn About the XLHED Newborn Study
Enews Signup

Latest News Upcoming Events

Edimer Expands Newborn XLHED Clinical Trial

Can Ultrasound Help Diagnose XLHED in Unborn Babies?

Genetic Testing:  Live Q and A on Facebook

Kayla’s 5K - 2015

Update Your Contact Information

Are you up-to-date? Updating your contact information is important so that you can continue to receive our newsletter, The Educator, e-news blasts and other important information regarding our events and programs. Please email us at with your name, complete address, phone number and email address.

Site Copyright 2010 by National Foundation for Ectodermal Dysplasias. All Rights Reserved. St. Louis web design by Insite Advice.
The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360