National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

February is Ectodermal Dysplasias Awareness Month

February is Ectodermal Dysplasias Awareness Month

Speak up for ectodermal dysplasias! Help us bring positive awareness to the ectodermal dysplasias. We have lots of easy and fun ways to get involved.

Learn About the XLHED Newborn Study
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Latest News. Upcoming Events

Remembering Rob Heberer

Join The Smile Makers

Watch Our New NFED Video!

Kayla’s 5K - Port Richey, Florida

Don’t Sweat It Fun Walk

12th Annual Rally for Ally

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360