National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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XLHED Treatment Has Started in Clinical Trials

Edimer Pharmaceuticals' XLHED Newborn Study Has Begun!

For 24 years, we have worked toward improved treatments for the x-linked hypohidrotic ectodermal dysplasias. Now, Edimer has dosed the first baby with a potential treatment!

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Welcome Kim Hardin as Pennsylvania Liaison

XLHED Research Progress - Front Page News

Third Family Participates in XLHED Clinical Trial

Brayden Klinger’s Create a Smile Car Show and Concert

2nd Annual Keene Crawfish Boil

10th Annual Rally for Ally

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.