National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Two families meet on TV show.

Must See TV!

The Degenhart boys had never met another person with HED until they met Joshua on of "Two in a Million," a TV show on TLC. Watch segments from the show of these charming boys!

Learn About the XLHED Newborn Study
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Latest News. Upcoming Events

Sell “Cookies for a Cure”

Families Bond on TV Show

35th Anniversary Celebration Dinner

Brayden’s Create-A-Smile Car Show and Concert

12th Annual Rally for Ally

Family Conference

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360