If you or someone you love has been diagnosed as being affected by ectodermal dysplasias, we stand ready to help you with caring support, information and answers!
Ectodermal Dysplasias International Registry
You can help advance ectodermal dysplasias research. We need every person affected by ectodermal dysplasias throughout the world to complete a profile. Join the Registry today.
Meet Our Families
Read about amazing families affected by ectodermal dysplasias and how they have overcome adversity.
National Family Conference
Join us this year
July 24-27, 2013
in Houston, Texas for a life changing few days. Get Roped In!
Don't Sweat It Walks/ Runs
Walk and run with us to raise awareness and support for ectodermal dysplasias!
International Ectodermal Dysplasias Organizations
Check out the International Ectodermal Dysplasias Organizations around the globe.
We Are Here to Help
If you have a question, are looking for information or want to talk to someone who understands, contact our caring staff.
Edimer Pharmaceuticals' XLHED Newborn Study Is Starting Now!
For 24 years, we have worked toward improved treatments for the x-linked hypohidrotic ectodermal dysplasias. Now, Edimer is starting a study of a potential treatment in newborn males.
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